August 21, 2010
I'm happy to report that all is well with Justin. It has now been 3 and a half years since his transplant. We had his yearly Survivor's clinic appointment at the end of July. I'm still waiting for the packet of results to arrive, but they did tell me that all of his blood tests came back good. They not only check for leukemia, but for many different kinds of secondary cancers that could occur. I believe that Justin is totally healed, so I don't particularly like them testing for all of these things and I certainly don't like them talking about it. But they are doctors, and that's what they do. His counts were:
WBC 7.1 (normal is 4.5-13.5)
HGB 14.1 (normal is 11.5-15.5)
Platelets 209,000 (normal is 150,000-450,000)
ANC 3270 (normal is anything over 1500)
Summer is officially over here and Justin has been back in school for a week. He's adjusting well, although it's a bit of a bummer going back to school after such a fabulous summer. He got to go on his first cruise ( 8 days in the eastern Carribean) and out west to Yellowstone (Idaho, Wyoming and Montana). Both trips were so different, yet both so much fun. I love to see the world through his eyes and his experiences. These trips are definitely memories that he will carry with him forever.
I am really concentrating on food with Justin. He has never been a big eater. The only complaint from the doctors at our appointment was Justin's height and weight. He turned 13 in May and is 4' 11 1/2" and weighed 80 pounds. That is very small for someone his age, and that seems to concern the doctors. Of course, I want Justin to meet his full height potential (I know that weight catches up with us all eventually), but I am not willing to consider putting him on growth hormones at this point. He could very well just be a late grower, but the doctors are worried that the chemo and radiation may have stunted his growth. I have been shoving the food into Justin ever since his appointment (which isn't always easy). He has actually gained about 2 1/2 pounds in less than 4 weeks. So I am thrilled with that. Now I am really praying that he will grow at least 3 or 4 inches taller this year. I've started giving him fruit and vegetable drinks everyday. Hopefully that will help--especially since he basically eats no vegetables on his own and very little fruit.
Justin had a great time snowboarding in February, but unfortunately he fell and broke his right wrist. Thankfully, he is left handed. He was so good about the cast. It broke my heart those first 3 weeks to have him in a cast all the way up to his shoulder where he couldn't bend his arm at all. I thought that was overkill for a broken WRIST, but the break was in the growth plate, so apparently it was necessary. After 3 weeks he was able to go to a cast that was below his elbow. That was way better.
Sorry that it's been so long since the last post, but thankfully there is nothing new to report medically speaking. I don't know how many people still actually read this blog, but I still like to update every now and then. Thank you for caring about our Justin.